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Personal account

When Time, Aftercare, and Openness Fail

Even when an illness is severe and the prognosis is poor, delays, unclear communication, and inadequate aftercare must not simply disappear into the background as if they did not matter.

The person at the center of this account has already passed away. She was a woman in her mid-sixties with a rare and difficult-to-treat cancer. From the very beginning, her medical chances were poor. For that very reason, this is not about claiming that every negative outcome could have been prevented. It is about the impression that several failures piled up in this case: delayed action, unclear communication, problematic wound care, and a lack of openness toward the family.

The course of events began during the COVID period. After several members of the family, as well as the woman herself, had contracted COVID, her circulation deteriorated significantly. The family called emergency services. At the hospital she was stabilized, and an examination showed that something more serious lay behind her condition. From there, further treatment continued through other clinics and responsible physicians.

This is not about portraying every serious illness as preventable in hindsight. It is about whether, in an already critical situation, additional time, clarity, and care were lost.

A Course Marked by Repeated Strain

From the family's perspective, the decisive treatment took far too long. The surgery intended to remove the tumor did not take place until about half a year later. The criticism is not that a cure could have been guaranteed. The criticism is that valuable time appears to have been lost in a situation that was already highly critical.

After the operation, further problems arose. The woman was discharged with a wound that had not yet healed. Fluid accumulated in the wound but could not drain because the area had already been closed. About two weeks later, the suture partially burst open, and the trapped fluid spilled out. The result was another admission to the emergency department.

Later, it was found that tumor tissue was still present and that another operation was necessary. Within only two months, she was operated on twice. After that, the wound initially remained open, and a significant part of her care shifted to the family and outpatient wound treatment. Healing took a long time. At the same time, this also delayed her further medication-based treatment.

A Final Year Under Constant Burden

Over the following year, the woman's condition continued to deteriorate. Nausea, vomiting, stomach problems, and diarrhea shaped her everyday life. It was a long period of exhaustion and uncertainty. A few weeks before her death, she had to be hospitalized again. There she was stabilized and given stronger blood thinners before being discharged home once more.

About two weeks later, she died in the hospital. According to the family's account, she succumbed to her tumor and internal bleeding.

What Remained Especially Burdensome

What weighed most heavily on the family was not only the medical course itself, but also the communication throughout that time. In their view, no doctor openly addressed the true seriousness of the situation during the many hospital stays. Only when a second opinion was sought at another clinic was it stated clearly that her chances of survival were very low.

That is where the real core of this case lies: when an illness is already grave enough, communication must not also become unclear, evasive, or reassuring in a misleading way. Families must know what they are facing. Patients must know it as well.

The Bitter Conclusion

From the perspective of those left behind, the conclusion remains bitter: action was too slow, the surgical care did not appear convincing, wound aftercare was burdensome, and communication remained dishonest or incomplete for too long. Whether this could have changed the outcome is another question. But the impression remains that, during the final phase of her illness, she did not receive the clarity and care she deserved.